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fndandmecom

Living with Functional Neurological Disorder.

Month

November 2015

Controlling symptoms of FND.

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I have been suffering a fair bit over the last two weeks, I continue to have fainting episodes and dizziness. I am waiting to see the cardiologist to deal with my heart issue. I am yet to be diagnosed but the doctors believe that the next step will be to fit me with a pace maker to control my irregular heart beat.

As a result of my current situation my neurological symptoms have also ‘flared’ up. I am suffering with more non epileptic attacks and nasty migraines. Thankfully, these seem to be occurring more at night time so are not affecting my work too much!

I have been researching ways to try and control the symptoms of FND. I have found some useful tips on this website http://fndhope.org/fnd-symptoms/ .

During my last visit to Queen’s Square, I met with a Neurophysiologist. He showed me some ways of postponing my seizures that were similar to meditation. You have to relax all your muscles and breathe deeply. I found that this works at first but then the seizures come back with a vengeance later on in the evening.

I have been feeling quite down and had to remind myself of why I am doing all of this.We only get one chance at this wonderful, intriguing thing we call life. The way you treat others will reflect on what those around you think of you. Our actions and choices help to shape who we are.

I am surrounded each and every day by amazing, inspiring and kind people at home and at work. I am privileged enough to spend my days teaching young children. The feeling that you have when they hit that ‘light bulb’ moment really is indescribable. Just thinking about it, gives me goosebumps!!

Spread love not hate. Spread smiles not frowns. Thank those around you whenever you can about the smallest of things. Treat each day like it’s your last.

Love life. Life is beautiful xxx

Liebster Award!!

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Firstly, I would like to say a huge thank you to https://thebloggeronthemount.wordpress.com/2015/11/27/liebster-award/ for nominating me for the award. I am always very grateful for his encouraging feedback! The Blogger on the Mount’s blogs are always very interesting and make for a great read.

So, here it goes my answers to The Blogger on the Mount’s great questions…

 

  1. How and where do you write?                                                                             I write my blogs on my partner’s laptop. I tend to write whenever I get a chance. After suffering with my neurological illness since 2013, I wanted to spread the word and raise awareness of FND.
     2.  What is your favourite colour and why?
           My favourite colour is and  always has been purple. I have always had  a like of mystical and misunderstood and I feel the colour purple represents this. I find it a calming  colour.
     3. Do you have a favourite quote? If so, what is it?
         My favourite quote has to be: ‘When life gives you lemons, make lemonade’. This is because it’s kind of a life long moto. I haven’t always been handed the easiest things in life but I truly believe that positivity is key. If you learn to keep smiling and to appreciate what you have, life always seems that little bit better!
     4. What’s the most inspiring book you have ever read?
         The most inspiring book I have read has to be ‘The Book Thief’ written by Markus Zusak. The story focuses around a young girl, Liesel who is sent to live with a family in Germany during the second world war. The narrator of the book is non other than the Grim Reaper! He becomes mesmerised by this young girl and all the sadness that surrounds her. I love the escapism the book creates, you really get lost in the story.
       5. What music do you listen to if you need cheering up?
          I love music of all kinds, I try to use it every day in my teaching. Music inspires me and creates wonderful memories. I couldn’t imagine a life without it!
        6. What time of the year is your favourite and why?
         Christmas has to be my favourite time of year. I love to spend time with my loved ones. I also love to give gifts to those special around me. Just the thought of it gives me goosebumps.
        7. Name the best place you have ever visited?
         Oooo this a tough one! One of the best places I have ever visited has to be Japan. When I was 15, my uncle was living in Setagaya Ku near Tokyo. The funniest thing was that I had never been abroad till I went there. The country is breathtaking. It really is like an alternative universe.
        8. Has a particular experience shaped the way you think?
         I am a strong believer in life being a journey- a journey of learning. Each and every moment has helped to shape who I am today, good and bad. I am still learning and it continues to be one heck of a ride!!!
       9. How do you like to spend your free time?
        I like to spend my free time with my children. This can be anything from bowling to golf or even a duvet day. They are what make my life special.
        10. In what way is this Christmas going to be special for you?
         Christmas will be a time of thanks for everything I have. Although I have been suffering with my health, I still know that I have a lot to be grateful for!
        11. My blog is about faith and learning more about God. What does faith mean to you?

Faith means belief to me. A belief in a greater good, a protector a creator and so many other things.

 

Nominees:

  1. agenda19892010
  2. rogershipp
  3. Krista
  4. Eileen O’
  5. Andrea Badgley
  6. Reluctant Baptist
  7. Canimim
  8. My inspiration logbook
  9. Ben Huberman
  10. The Blogger on the Mount
  11. Julie

The idea of the award is to recognise and promote new up and coming blogs of a good standard with less than 200 followers (on WordPress).

My questions for my nominees are – 

  1. What inspired you to start to write your blog?
  2. What is your favourite food and why?
  3. Do you have a favourite book? If so, what is it?
  4. What’s the most inspiring book you have ever read?
  5. What countries would you like to visit, that you haven’t already?
  6. Which bloggers have inspired you?
  7. What would be your idea of the greatest job?
  8. What other things would you like to blog about?
  9. How do you like to spend your free time?
  10. In what way is this Christmas going to be special for you?
  11. My blog is about my neurological illness. What is the main focus of your?

 

hope you like your questions.

For anyone new to the Liebster Award this is how it works –

  • In a post – answer the questions that your nominator posted for his/her nominees.
  • Share 11 random facts about yourself.
  • Make up 11 new fun questions for your nominees.
  • Give some love back to your nominator, include a link back to their blog and their post.
  • You must nominate 5-11 bloggers.

Nominees – any questions, please just ask. There is no timescale to do this but please add a link to your new post below when you done it. The aim is to raise the profile of your blog. I’m looking forward to reading your answers.

Feel free to answer any of the questions from this post yourself, even if you have not been nominated this time. I would love to read some of your answers. Sorry I couldn’t nominate all my followers and blog friends. 

Anti bullying week 2015

Research has shown that people who have been bullied as a child are more likely to suffer from mental health problems in later life.

This past week has been anti bullying week in schools all over the country. I have seen on the news this morning that bullying continues to be a huge problem in our schools.

Unfortunately, I experienced bullying during my school years mostly by just one person. This had a huge effect on my self confidence. I never felt that I was able to talk to anyone about it and so I suffered in silence. This year’s theme has been ‘shout out at bullying’. The message being that no one should suffer in silence.

My youngest son is a shy and eccentric character. He has recently been a victim of bullying but thankfully he was able to tell me about it. It’s so important that anyone suffering because of bullying should have someone to talk to. I am grateful to have a close bond with my son and that he was able to talk to me!

Have you ever experienced bullying or been a bully yourself?

If so, how has that impacted on you in later life?

 

Always look on the bright side of life …

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It’s been a week or so since I have written a full blog. The past few days have been quite tough!

Functional Neurological Disorder has a wide range of symptoms, some of these include: non epileptic seizures, severe migraines, temporary paralysis. I could go on but I think you get the picture 😉 .

So when I fainted last Thursday night after experiencing numbness in my arms and face I assumed that this was probably just a nasty new symptom!

Following this episode on Thursday evening, I went on to collapse another two times on Friday morning. At this point, I was actually more frustrated than anything else. I called my GP and went straight over only to be sent to A&E.

The hospital took me straight through to ‘Majors’ and hooked me up to an ecg machine and put a drip in. They contacted my neurologist team at Queens Square and went through the symptoms.

At first the doctors were looking along the lines of my brain ‘overheating’ (who knew that could actually happen?!?).

After spending a good 12 hours in the hospital, I felt a little better and I told the A&E doctors that if it’s my brain they’re better off leaving it to the experts.

I spent the whole weekend in bed and in agony (where are my violins? Hehe). On Monday morning I went to the National Neurological Hospital in Queens Square. The doctors at the A&E had sent all my test results. I had to have several other tests whilst there.

It turned out that fainting and numbness are actually not symptoms of FND. After going over all of my test results it turns out that they have found that my heart is not beating regularly. This is why I have been fainting and feeling breathless. The hardest part of it was that this heart issue is completely separate from my brain disorder.

It’s a lot to take in, I’m just 33 years old and it looks like I’m 93 on paper. The cardiologist has said that I will most likely have to have a pacemaker fitted.

If I’m honest, at first I felt really angry. I wanted to let my family and friends know what had happened. I wasn’t looking for sympathy, I just wanted to vent. This ‘condition’ is just another challenge. The comments and love that I received was overwhelming. This just proved to me how lucky I am. Their words of encouragement and kindness just lifted me.

As we grow older it becomes more apparent that life is great but life is bloody hard. I won’t let my heart or my brain stop me. I have two amazing boys who need a mother and not a victim. I will continue to fight this fight for them with the amazing support from my family and friends.

Thanks for taking the time to read my blog.

Charlotte xxx

Please note that the image is not mine, I have borrowed it from http://i.ebayimg.com/images/i/140891086170-0-1/s-l1000.jpg

 

Count your blessings!

The World is in a state of shock. We wonder how anyone can justify the actions of what occurred in Paris on Friday night. How could anyone truly believe that they are acting on behalf of a religious belief?!?

I am really suffering health wise and I feel guilty. How dare I complain at a time like this. So many are suffering and so many people are affected by this terrible tragedy.

It’s important to remember that this type of tragedy is happening every day in some countries and we hear nothing. Nothing is mentioned in the UK about the 1000s of innocent civilians being killed each and every day in these war ridden countries.

Despite feeling so poorly today, all that has happened has helped to put everything into perspective. I guess my message is to hold on to all the great things that surround you. Instead of dwelling on the negative, focus on the positive. Most of all be grateful for all that you have and don’t be envious of the things that you don’t!

Pray for Paris.

Thanks for reading 🙂

Charlotte xxx

An odd encounter…

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In response to The Daily Post’s writing prompt: “An Odd Trio.”

Cautiously, the young, anxious boy made his way slowly through the dark and dangerous cave. As he gradually approached the small opening at the back of the cave, he heard a strange rustling, he knew that someone or something was there with him.

Sweat began to drip from his creased forehead, he wiped it away with his fresh beach towel. He shook from head to toe but he had the curiosity of a cat, the boy needed to know who or what was there.

He began to slide through the small opening, suddenly he heard the most almighty snarl. Then without warning a huge claw grabbed at the boys tiny arm.  He screamed. Luckily, he was so sweaty  his arms were as sloppy as a bowl of soup. He managed to break free from the grasp of the mysterious creature. He  sprinted away…

“Don’t look back” bellowed the creature from deep within the cave.

(Please note that I have borrowed this picture from Monsters website.)

What doesn’t kill you, makes you stronger!

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Living with chronic illnesses can turn a generally happy, go lucky person into an angry and bitter one. This is understandable, as it really turns your life upside down. However, the way you deal with a situation can really determine its affect on your life.

I have been extremely busy at work over the past week, hence my lack of blogs. Normally, I would have been really quite ill due to the chronic fatigue and seizures but I am pleased to say that I really haven’t been too bad 🙂 . I have a tendency to get over excited when I don’t suffer too much. I live in hope that finally my illness might be going. Due to past experience I know that this is probably not the case. What I must do is appreciate and enjoy this moment of feeling ‘normal’.

I genuinely believe that life is a constant learning experience. The things that I have been through in the past and every day have helped to mould me into the person I am today. It’s important to know that no one is perfect. We all make mistakes and wrong decisions. That’s what makes us human. It’s what we choose to do as a result of these experiences that define who we are.

Thanks for reading, please feel free to share and help raise awareness of Functional Neurological Disorder.

Charlotte xxx

A blissful rainy day.

In response to The Daily Post’s writing prompt: “Singin’ in the Rain.”

My perfect rainy day is most definitely being snuggled up with my boys. Picture this: Heating on full blast (forget the cost!). All in our PJs, under the duvet drinking hot chocolate and watching a good family movie. There’s nothing better!

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