Search

fndandmecom

Living with Functional Neurological Disorder.

Month

January 2016

Living with FND. The story continues …

image

I have been seriously ‘slacking’ on the blog so far this year so I thought it was a good idea to update those of you who follow 🙂

Unfortunately, since my last blog my health has begun to deteriorate (again). My cluster migraines have started to return causing more non epileptic seizures. On the plus side, this has been occurring more in the evenings which thankfully hasn’t effected work. However, it is my family that are suffering the consequences which leaves me guilt ridden.

I have had a pre op assessment for my heart and have to see the Cardiologist in 2 weeks time. My fainting episodes have lessened but have been replaced with awful bad turns. I begin to pour with sweat for no reason and feel as though someone is sitting on my chest (not a very pleasant feeling!!). As a temporary measure my GP has given me a spray to ease the chest pain called Glyceryl Trinitrate. This is usually used for Angina attacks but it does seem to ease the pressure on my chest. Although it makes me feel drunk?!?

I could easily fall into a hole of self pity but what’s the point of that? What would I achieve? If anything allowing myself to become depressed will only worsen my symptoms!!

My partner (Mr Right) has been unbelievably amazing. I know what stress all this is causing him, he could quite easily run a mile from me. I know that we are strong. Our family unit is a team, we work together to get through all these challenges.

I often wonder what effect all of this will have on my boys. I can only hope that these experiences will make them strong, independent and empathetic men. I try my best to make sure they have a ‘normal’ upbringing but there are some things that I can’t protect them from. They seem to accept all that happens and both seem to be happy. When I apologise for being ill my older son often says that he wouldn’t change anything and calls me a great mum 🙂 . They really inspire me each and every day. They cope so well with everything (better than me on most days!)

I will continue to fight this fight for as long as it takes. I can’t let it win. My family need me just as much as I need them.

Thank you for reading. Please feel free to share to help spread awareness of FND.

Charlotte x x x

Advertisements

Busy as a bee!!

bee

It’s been a while since I last blogged. I have been extremely busy with work and all that goes with it!I’m very pleased to say that despite being so full on my health has been okay 🙂

I haven’t had a bad turn since New Year’s eve. So I can say that I haven’t had a bad turn since last year 😉

I am still feeling extremely exhausted and experiencing migraines. Also, I continue to feel the burning pins and needles sensation that runs from my head into my spine. However, I haven’t had any seizures or fainting episodes for nearly a fortnight.

I have to make the most of being fairly well. I try not to get over excited at times like this as it always seems to back fire but I know that slowly but surely my health is improving. This is an amazing achievement for me, especially considering how busy I have been.

This week I attended my first CBT session (Cognitive Behaviour Therapy). I have had previous sessions last year but felt that it wasn’t helping. However my Neurologist insisted on giving it another try.

Cognitive Behavioural Therapy focuses on changing your behaviour to improve your quality of life. I have given a more detailed explanation in an earlier blog. Anyway the purpose of this therapy is to help me become more aware of things that I do that make my symptoms worse and trying to change that behaviour. The trouble is that I am a very routines person and it is hard to change the habits of a lifetime! I have been given mini tasks to complete to help me notice any patterns. I’m going back in two weeks to see what I find.

I’m still waiting for my next appointment with my cardiologist to find out if we are going ahead with the Electrical Cardioversion. My heart is causing me shortness of breath and dizziness but I haven’t fainted for two weeks so hopefully it is settling at least for now!

Thanks for reading!

Charlotte xxx

Thought for the day …

Brain

Sometimes being strong is the only choice you have! No one wants to spend every day like it’s a battle but if you don’t fight it will eventually beat you xxx

Blog at WordPress.com.

Up ↑