I am thrilled to see how much awareness was raised by FND Action yesterday during the FND Awareness Day 2017. They’re truly amazing and compassionate, they all worked really hard and it paid off. They even had two video interviews with Dr Mark Edwards and Dr John Stone, two main specialists in Functional Neurological Disorder. Below are links to these interviews:

https://m.facebook.com/story.php?story_fbid=402126683488737&id=291997261168347
These posts reached over 20,000 people and helped those who didn’t know about FND. A huge thank you to all of those involved!

I’m afraid I have been quite poorly, this seems to be a general pattern for me. As I head towards the end of term, I become unbearably exhausted and as a result I have more seizures and spend every waking moment in pain. Unfortunately, I had a bad turn at work on Friday. I didn’t know it was coming and if it wasn’t for my lovely friend at work it could have been a whole lot worse! It was all quite distressing, many people saw my seizure, normally I manage to make it to my head’s office but this time it didn’t give me enough time. 

I am extremely lucky to work with such lovely people. I feel guilty for upsetting others but sometimes, it’s just out of my control. More than anything, my pride was bruised. I’m quite ashamed to say that I was really quite devastated. Anyone who suffers from seizures  (epileptic or non epileptic) will hopefully understand why. The only way I can explain it is when I have a seizure I’m completely out of control. I’m vulnerable and not me. I’m a professional, I have worked very hard in the past to gain my career. When I fit, it’s like all of that hard work is stripped away. I become a lesser version of myself. I don’t want pity but I appreciate the kindness I am shown. I can’t change what has happened and will have to swallow my pride.

I just need to make it through to the end of term. There’s only one week left. I have had a lovely, relaxing weekend and have been spoilt by my boys for Mother’s day. Sadly, I haven’t been too well but I have been very well looked after as usual. 

Happy Mother’s Day to all the wonderful mums out there. I hope you have had a day of special memories just like me.

Thank you for taking the time to read my story. 

Charlotte xxx 

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