It’s been a while since I have blogged. I’ve been busy focusing on getting through each day. My health has been up and down but I’m pleased to say that I’m having more good days than bad.
This week I met with my new neuro physiotherapist, it turns out that I actually know her. Our children went to school together. She very kindly offered to pass me to one of her colleagues if I felt uncomfortable but to be honest, I felt more at ease speaking to someone I know.
The purpose of this physiotherapy programme is to find ways to improve my tremor and the loss of sensation in my legs. Those of you who regularly read my blog will know that since November, I have been experiencing something called frozen gait. This causes me to suffer from temporary paralysis of my legs. They turn blue and I’m unable to move them. Luckily, at the moment, this is only temporary and eventually they start to move again. I saw my neurologist back in December and he referred me to my local neurological outpatients hospital. Strangely, in my notes he had said that I was unable to walk at all. So when my physio saw me stand and walk towards her she was quite shocked!
I’m unsure why my neurologist put that I was unable to walk in my notes unless he presumed that’s what was going to happen?!?
My assessment lasted just over an hour. We went through my medical history and discussed treatment plans. I am going to be referred to an occupational therapist who can help with fatigue management. Unfortunately, there’s little they can do to stop my legs freezing. Obviously, my main concern is that I will wake up one day and not be able to walk. This sounds very dramatic but sadly I know that this can happen with functional neurological disorder. However, I refuse to live my life in fear and anxiety. It hasn’t happened and if it ever did I know that I will get through it! My physio discussed ways to try and get my legs moving and to be honest, I was already doing what she suggested.
Overall, I feel that the assessment was positive. I’m still walking, I’m still working and just about surviving. I know how very lucky I am considering my diagnosis of FND! Yes, each day is a struggle and a battle. I never know what each day will bring but I know that whatever happens, I will not face it alone. I have an army of family and friends behind me and supporting me all the way and for that I’m forever grateful.
I am in my final term of this school year. It’s been very hard for me returning to more whole class teaching but so far I have managed it. My health has deteriorated but I’m still going. I’m very lucky to work with such an understanding headteacher. I have episodes of seizures and bad turns at work but I’m treated with respect not pity and that means a lot. It’s hard, I’m not going to lie. Teaching is such a demanding job but I love it. I just hope that I can keep going and perform to the best of my ability whilst pacing myself and making sure that I don’t over do it.
My next neurologist appointment isn’t until next month but hopefully if things stay afloat I will be okay. I fainted on Thursday and then had a seizure. Unfortunately, I landed on my right hand. Luckily, it’s just a sprain and not fractured and on the plus side at least I didn’t bang my head for a change!
Thanks for taking the time to read my story.