The past two weeks have been full of ups and downs. I received a call last Thursday from the National neurological hospital in London. They invited me to attend the FND rehabilitation course on the 20th November. I went in to complete panic mode. I have to attend every Monday and Tuesday for five weeks in a row. So, I went about changing my days at work and arranging child care for my boys. Then, of course, the worry set in. Would I be able to manage all the travelling and work? How will my health cope? I managed to sort things only to receive a call to say that they would have to cancel and re book me in for January (the original month).
I couldn’t believe it. I had started to get quite excited about the possibilities of this rehabilitation. This could be my only chance to return to a relatively normal life. I’m not expecting miracles but any improvement would be better than none! However, as I thought about it, I decided that this circumstance is actually much better. I never like to be ‘thrown’ in to a situation and now I have plenty of time to prepare.
I have been really poorly over the weekend but I know that it’s a result of all the panic. Despite all the illness, I have realised I am so lucky to work with such wonderful, caring people. They’re so willing to make changes to help me and that really means a lot!
My boys are both working hard at school. My eldest, who is now 15, is currently taking his Mock GCSEs. I am so proud of how he has knuckled down and is really trying his best. I really couldn’t ask for more. My younger son is also doing really well in his final year of primary school. They are both so amazingly resilient. I just hope that the stress that my illness causes doesn’t effect their chances.
I am very busy at work, teaching 2 and a half days a week and taking the choir to rehearsals for Christmas shows. I have rested as much as possible today and hopefully that will help me make it to Friday. I have recharged my ‘spoons’ and I’m ready to take on the world (or at least a class of 5 year olds 😂)
Thanks for taking the time to read my story.