The past few weeks have been rough but I’m thrilled to say that I’m back on track. The thing is my health has been crap but it has still been so much better than it was before my rehabilitation course. I am stopping most of my seizures and the ones I can’t are much less violent.
I have refocused myself by using the tools I have been given. I’m exercising again and have even been for a few runs, short ones, but I’m still thrilled. I have been using my CBT to challenge my negative thoughts and trying to pace myself. Unfortunately, it’s inevitable that I will over do it with my line of work. Although, I’m only contracted to work 2 and a half days, in reality I work 5. I have to mark books and plan in my own time. It’s frustrating because I love my job but it really gets in the way of me getting better!
This Sunday is a HUGE day for Functional Neurological Disorder. We are holding a huge awareness raising day. All the charities and support groups including Friends in NEAD are making videos, 7 minutes or less, using the hash tag #voices4fnd . The idea is to get people talking about this very misunderstood disorder. There’s so much stigma around it and it’s about time people are educated about it! Here’s my video:
I was extremely lucky to get the help I needed at the Royal Hospital for integrated medicine back in January. The multi disciplinary team made up of neurologists, neuro psychologists, neuro physiotherapists and occupational therapists educated me on my illness. On top of that, they came together to help me begin my healing process. I know that this treatment might not work for everyone but it really is worth a shot! I spoke to one of the medical professionals today and she has invited me to be a case study as part of a conference to educate others. The conference will have attendants from all around the country. The purpose is to educate these other teams on how to treat patients with Functional Neurological symptoms. How amazing is that?!? They’re educating people from around the country to stop the stigma and get people the help they need. I’m honoured to be a part of it.
I have come across some people that feel only a privileged few get the help they need, this is so far from the truth. I have fought just like everyone else. I waited 5 years. 5 long, awful years. I got the help because I didn’t give up. I had too much to fight for. You can do the same.
The rehabilitation only works if you fully believe your diagnosis is correct. I did, it was hard for me to accept but once I did, it all started making sense.
So, I know I’m not ‘fixed’ YET but I will be and I will make it my life’s work to help as many people as I can to get the help they need and deserve. I’m back on track and I refuse to be derailed any more!
Please help me to raise awareness on Sunday 25th March 2018 by liking and sharing anything with the hash tag #voices4fnd.
Thanks so much to those that take the time to read my story. It’s you that help me on this journey in improving understanding of FND.