It was the night before school, when all through the house, Charlotte was stirring and the cat gifted her a mouse š¤Ŗš
Today is the last day of my school holidays. Tomorrow morning, will mark the beginning of the Autumn school term in Scotland.
I have been extremely lucky to have had a wonderful break, itās been full of ups and downs but thatās how the cookie crumbles!
I had an amazing holiday to Croatia with my Mr Right and my two grown up children. We experienced such wonderful things.
I have had time to catch up with friends and family which is always lovely.
The downs have been difficult but are always inevitable. One of my close family members has been very poorly and gave us all a scare but thankfully theyāre still here and heading in the right direction. Another close family member has been dealing with a huge, life changing transition which I am trying my best to support them through.
This is of course, life. Life is never one way or the other, itās constantly evolving and changing. Iām grateful for the good times and I try my best to always learn from the bad times.
As expected, my FND (Functional Neurological Disorder) has fluctuated throughout the last few weeks. I have had moments of feeling rested and well. Then, on the flip side, when I become less busy, I begin to become more aware of my pain. This is mostly neuropathy (nerve pain) and migraines.
When living with a chronic illness like FND, you can never fully be free. Just when you think you might be well again, symptoms appear. Itās as if it likes to remind you that itās there. However, Iām quite a veteran of this game and I know how to manage my symptoms when I have a flare up. Although I have had some difficult days, Iām back in control again. So, up yours FND!! I win, you lose šŖš»
This summer has been quite a transition as my youngest son has moved on to socialising with his friends a lot more so Iām suddenly left with a lot more free time than ever before. Some might say that itās fantastic but I have found it quite difficult. This is all part of the process and I will eventually adjust, itās just strange as I have never been alone in my whole adult life. Next summer, I will be more prepared and can plan accordingly.
Thereās been awful, hateful comments made towards some of those who are part of the FND community recently. The most shocking part is that a lot has come from other chronically ill individuals. This really saddens me. No one ever wants to be ill. Itās not a life anyone would choose. You canāt compare one condition or one personās experiences to another. We are all human and just trying to survive and live the best lives we can with the hand we are dealt. Please be kind.
Iām looking forward to getting back to routine tomorrow. Iām lucky to be part of an amazing team and will be forever grateful that I have this opportunity.
Thank you for taking the time to read my story.
Charlotte xxx
September 23, 2023 at 3:29 pm
Hi Charlotte,
My name is Erin Gardner, and I am in my final year of a neuroscience and psychology degree at the University of Nottingham! I’ve been recently appointed as the Newsletter Writer for the charity FND Hope UK, and i would love the opportunity to talk to you about your blog and your experience with FND since your diagnosis. I’ve been reading through your blog and I think your perspectives and experience would resonate with a lot of our readers!
Please do email me if you’re interested in a quick interview (at eringardner995@gmail.com), as i would love be able to help share your story and blog with more of the FND community!
Thank you
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September 23, 2023 at 4:27 pm
Hi Erin,
Thank you for your email.
I would be happy to be interviewed about my blog and living with FND.
I will email you so you have my contact information.
Kind regards,
Charlotte
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